Surgery in 25 days oh my!!

This week has been a whirlwind of activity.   Kaiya's surgery is scheduled for May 6th.  Her preop appointments are going to be on May 3rd.    I have so much to do to get ready for her surgery.    Kaiya requires 3 procrit shots before her surgery the first one to be given at 21 days before surgery.    I have the appointment set up for it.  I have the time I am going for preappointment bloodwork but the pedi's office has dropped the ball on the pre auth we need from the insurance company to get the medicine.  Their office has closed for the day they work 1/2 day on Thrusday and even if pharmacy gets preauth on Friday it will be Monday before the meds arrive.   Maybe I can move her appt to Monday evening but in any case this is frustrating.   Yes, I made other calls.  I called the insurance company to ask the status of the pre auth and the lady who I got after waiting for 10 minutes on hold sounded like she was talking with a bag of nails in her mouth and I couldnt understand what she said.  So I got off the phone frustrated not knowing anything else.  So I called the PS office and they said we could start it Tuesday if need be and then next week just give it on Monday.   Do I feel good about this?  No.  Do I have a warm fuzzy about this?  No.  The peditricians office dropped the ball and didnt follow up before they left for the day.  I bet you 100 bucks if it was her kid she would have followed up.  This medicine could make a big difference in Kaiya's surgery outcome.   I am pissed and she will hear about it tomorrow.   --ok maybe not as you get more flies with honey but if this shit isnt figured out tomorrow we are changing peditricians.  
So once we get this procrit thing straightned out, hopefully tomorrow I will call the surgeons office and verify we got the pre auth for the surgery and hospital stay and begin to see what else I need to do to get the neurosurgeon covered.   Holy hell this is a full time friggin job.   Hopefully my FMLA paperwork will be at the house when I get home tonight or I can add tracking it down to my list for tomorrow as I am sure its going to be a task and a half getting it filled out correctly and turned in.  
This weekend Kaiya will have her blood draw and mommy will drink vodka to keep herself calm.  ha ha.   Then on Monday we can start making our travel arrangements.   I think we will try the Residence Inn.   I have been told they have a hospital discount for a suite and they serve breakfast.  Having breakfast provided will cut down on some expenses of the trip.   Travel arrangements are the part I like best.  I love to travel too bad this isnt going to be a fun trip but we will have the weekend after preop to do some fun things with little Ms Kaiya.   
After travel arrangements are made I get to make sure every thing at home is in order for my mom to stay with Camryn and DJ.  Camryn has never had both mommy and daddy gone for more than 4 days before.   I know she will be fine but we are going to make sure we have a way to video chat with her while we are gone atleast.   My mom is excited and the kids are excited.   I have to get the medical poa to my mom for while we are gone and lemme think what else she will need.   I have to make sure to leave checks for the babysitter and all kinds of other stuff.   Then once we get back my mother in law is going to stay with Kaiya after I have to go back to work for a few extra days.   It feels good to have family involved and helping us with the kids.    Every one has been giving us so much love and support and now the hardest part is yet to come but I keep telling myself that a month from now I will be sleeping in my own bed and when I look to the crib beside me my little girl will be on the other side.   She will be fixed.   She will be home where she belongs.  
Well thats all for now.   SO many thoughts in my head.   This helps.....

Theres my sweet Kaiya in her Easter dress the same dress Camryn wore her very first Easter.  Below is Cammie in the dress..