Surgery in June in Dallas

Kaiya's condition requires surgery to fix it.   There isn't enough room in her skull for her rapidly growing brain and the fusion is causing facial asymmetry.  So she will be having a procedure called a Cranial Vault Reconstruction with a front orbital advancement.   --Damn thats a mouthful.   The local doctor told us it would be a 6 day hosptial stay and she would require a blood transfusion.    He couldnt tell me how many of these kids would need another operation or anything else.  He also told us he did 4 of these type of surgerys in the month of January.   This honestly didnt impress me much.   I know because Camryn has a metopic ridge that there is an amazing craniofacial surgeon in Dallas Texas.   In 2010 Camryn's metopic suture closed forming a drastic ridge from her softspot to the bridge of her nose and it caused me much anguish.   So I became well versed in the cranio world.   I know that I didnt want the local team to be the ones to fix Kaiya's skull.  I knew that after having met with Dr Fearon in Dallas that he had the skills to fix my darling Kaiya.   I immediately contacted his team and began the process to get Kaiya's surgery scheduled with them.   
Here is my list of reasons why we are choosing him...

-Shorter hospital stay 48 hrs vs 4 -5 days  kids can fly again right after surgery

- doctor uses cell saver technology so less likely to need blood transfusion

- doctor doesnt use dissolvable plates or screws uses dissolvable stitches instead to fix deformity

- doctor follows patients into the teen years

- doctor specializes in craniosyostosis only

- uses dissolvable stitches vs staples (less painful for baby)

- doesnt leave holes in the child's skull

- does the surgery more frequently than the local team local team only does 2 -4 a month

- I know atleast 6 other mothers who have used them and raved about how wonderful he is. 

- our insurance will cover him and the hospital down there

- always has the same OR team.  They are all well versed in cranio surgeries.  

My list goes on and on but in all honesty I want whats best for my Kaiya.   And I know that for us Dr Fearon is the right choice.  

 

So after several contacts with Dr Fearon's office, a phone call with Dr Fearon and getting all her paper work filled out now we await a surgery date.  

 

Here is a link to Dr Fearon's website for more info..

http://thecraniofacialcenter.org/index.html