Waiting Waiting Waiting -- Added option to follow this blog.

Waiting.  Sucks.  Waiting really sucks.   She is rubbing her right eye!  What does that mean?  She is cranky!  Is her head hurting her?  She doesnt want to take her bottle today!  -- Is this cranio related?  I hate this waiting game.   I am counting down the months till June gets here.   I dread June!   I just want this whole surgery over with.  I just dont know what I should be doing and untill we get a date for her surgery, there isnt much I can do!  I am concerned with the cost!  I am concerned I wont be able to save enough money for the trip to Texas!   I am concerned insurance might deny it.   I know I am gonna have to work to get the neurosurgeon approved.  Every thing I have read from other moms in this position have had to do this. I dont know what I am gonna do with my other children while we go to Texas!    Apparently- the NS our Craniofacial doctor uses isnt on any network.  I worry about not having any leave time from work.   I am currently out of leave and wont accrue much between now and then.  So not only am I waiting for surgery I am waiting to start crossing the T's and dotting the I's.   I hate the unknown!   I guess I need to make a list and a time line.  That will atleast make me feel better.  
All I do know is I am doing the right thing for Kaiya.  Last week I was browsing a cranio website and read stories about uncorrected adults and how not having had surgery as a kid really has impacted their lives.  Every aspect of their lives for some of them.   How horrible would that be?   I know I dont want that for my Kaiya.  I just want to get her fixed and go on with our lives.  But then I read about kids needing more surgeries.   I worry about her eyes?  Are her eyes ok?  Our surgeon recommended waiting till 18 months to get them checked.   I will ask him more about this in an email this week.   I think I just need to step back from it all for another month or so till we get our surgery date and just enjoy my princess.   She is really the sweetest most easy going baby I have ever had the pleasure of knowing.  
Any way I finally figured out how to add the follow option to my blog so now you can all follow us.   And of course I need to add a couple pictures of my baby girl.    She is 8 months old this week.   6 months adjusted. 

And one more image of both girls in their coordinating outfits Camryn picked out while shopping yesterday...